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Voices

Stories from people living with illness, and the teams who listen to them

Patient essays, podcast conversations and our own thinking on AI and patient insight. Pick something to read in five minutes or listen to on the way home.

A doctor reads a short chart at a desk while the patient across from him carries a heavy backpack full of stonesLatest · Article · 3 min read

She Keeps Declining Surgery. Her Notes Don't Say Why.

A friend keeps declining surgery. Her medical record says so, and nothing about why. That missing reason is exactly what trial teams never get to design around.Read the story →
Executives celebrate a giant injector pen with confetti while, through the window, a patient reads a letter alone at her kitchen table.Article · 4 min read

My Patient Group Knew About This in April. The Literature Still Doesn't.

A large group seated in a session, every person turned toward the one participant who has raised a hand to speak.Article · 4 min read

What happens when the insight is wrong?

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The Merakoi Voices podcast

Patient experts talk about diagnosis, trials and being heard.

All 17 episodes →
Merakoi Voice YouTube Poster Deepak ShuklaPodcast episode · DiabetesPatient Voices & Health Systems in India — A Conversation with Deepak ShuklaMerakoi Voice YouTube Poster Stephanie WynnPodcast episode · GastrointestinalTrust, Plain Language & Patient Navigators — A Conversation with Stephanie A. WynnMerakoi Voice YouTube Poster Dawn MorganPodcast episode · Multiple SclerosisMS & Patient-Led Research — A Conversation with Dawn MorganMerakoi Voice YouTube Poster Alfred SamuelsPodcast episode · OncologyNumbers and Narratives – A Conversation with Alfred Samuels
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More stories and essays

A smug AI robot presents on a stage while, in the next room, an older patient expert hands a flare-up kit to a newly diagnosed patient.Article · 4 min read

The patients AI never read about

Stigma keeps some patients silent online. Age keeps others offline entirely. Either way, AI has never heard from them, and they may…A home blood pressure cuff and monitor, a coffee, and a phone showing an empty chat bubble on a kitchen table; the chair is emptyArticle · 6 min read

Ten years of blood pressure, and a chatbot that never knew my GP retired

My dad's question, a paper diary, a GP who retired mid-monitoring, and a chatbot that got very good at my data while…Rebekka Insider SpotlightArticle · 5 min read

Insider Spotlight: Why I’m Moving Patient Engagement "Upstream" to Find the Emotional Truth

Since I am more comfortable sharing my perspective through the written word than on camera, I wanted to take this opportunity to…merakoi mrbeastArticle · 5 min read

Why Start from Zero? Just Ask the Patient Consultant

Why start from zero with market research when you can ask someone who’s lived the disease? Patient consultants offer strategic insights grounded…depiction of balanced scales one side filled with legal symbols gavel law book the other with healthcare icons pill bottleArticle · 5 min read

Flat Journey Maps, Hidden Risks: Why Patient Feelings Must Shape Design

Elizabeth’s fear stayed off the chart, yet it turned a routine scan into paralysis — proof that emotions unseen in EHRs can…Elizabeth and Debbie YTPodcast episode · Cardiovascular

Confidence, Crisis, and Comeback – A Conversation with Elizabeth Manuel Bayleigh

Elizabeth, a high-powered judge turned vulnerable patient, reveals how she overcame devastating medical oversights. Explore her fight for transparency, self-advocacy, and the…

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