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Voices

Stories from people living with illness, and the teams who listen to them

Patient essays, podcast conversations and our own thinking on AI and patient insight. Pick something to read in five minutes or listen to on the way home.

A large group seated in a session, every person turned toward the one participant who has raised a hand to speak.Latest · Article · 4 min read

What happens when the insight is wrong?

One patient out of eighteen asked how shift workers would book their trial appointments, and it changed the scheduling design. The part worth noticing is what you can do next when a real person said it. Gap 5 of five.Read the story →
A group of people talking together inside an enclosed space while one person outside reaches toward them without making contact.Article · 4 min read

The patients AI never read about

A home blood pressure cuff and monitor, a coffee, and a phone showing an empty chat bubble on a kitchen table; the chair is emptyArticle · 6 min read

Ten years of blood pressure, and a chatbot that never knew my GP retired

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The Merakoi Voices podcast

Patient experts talk about diagnosis, trials and being heard.

All 17 episodes →
Merakoi Voice YouTube Poster Deepak ShuklaPodcast episode · DiabetesPatient Voices & Health Systems in India — A Conversation with Deepak ShuklaMerakoi Voice YouTube Poster Stephanie WynnPodcast episode · GastrointestinalTrust, Plain Language & Patient Navigators — A Conversation with Stephanie A. WynnMerakoi Voice YouTube Poster Dawn MorganPodcast episode · Multiple SclerosisMS & Patient-Led Research — A Conversation with Dawn MorganMerakoi Voice YouTube Poster Alfred SamuelsPodcast episode · OncologyNumbers and Narratives – A Conversation with Alfred Samuels
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More stories and essays

Rebekka Insider SpotlightArticle · 5 min read

Insider Spotlight: Why I’m Moving Patient Engagement "Upstream" to Find the Emotional Truth

Since I am more comfortable sharing my perspective through the written word than on camera, I wanted to take this opportunity to…merakoi mrbeastArticle · 5 min read

Why Start from Zero? Just Ask the Patient Consultant

Why start from zero with market research when you can ask someone who’s lived the disease? Patient consultants offer strategic insights grounded…depiction of balanced scales one side filled with legal symbols gavel law book the other with healthcare icons pill bottleArticle · 5 min read

Flat Journey Maps, Hidden Risks: Why Patient Feelings Must Shape Design

Elizabeth’s fear stayed off the chart, yet it turned a routine scan into paralysis — proof that emotions unseen in EHRs can…Elizabeth and Debbie YTPodcast episode · Cardiovascular

Confidence, Crisis, and Comeback – A Conversation with Elizabeth Manuel Bayleigh

Elizabeth, a high-powered judge turned vulnerable patient, reveals how she overcame devastating medical oversights. Explore her fight for transparency, self-advocacy, and the…patient questionnairesArticle · 4 min read

Going Beyond the Questionnaire

Surveys used to be enough—until they weren’t. Beyond the questionnaire lies a depth of real-world patient expertise we can’t afford to ignore.…Gary and Sandra YTPodcast episode

Reshaping Healthcare with Lived Experiences – A Conversation with Gary Ho

Ever felt like your 'patient engagement' is more box-checking than groundbreaking? Meet Gary Ho—who went from 'dismissed patient' to 'healthcare revolutionary.' Tune…a doctor and a patient having a conversation overlaid with digital lines of AI code and chatbot interfaces illustrating theArticle · 4 min read

AI, Healthcare, and the Everyday Revolution

AI is transforming how we work—and how we manage health. From automating tedious tasks to revolutionizing patient research, AI removes barriers. Patients…Jeff and Kevin YTPodcast episode

AI in Healthcare: Friend or Foe? – A Conversation with Jeff TenBroeck

In this episode, Jeff TenBroeck shares how AI is transforming patient research, business automation, and even insurance decisions. From ChatGPT-powered health insights…Image in the style of a Mythbusters episode A nervous female southeast asian holding a medicine pill in each handArticle · 6 min read

Placebos, Myths, and Real Care: Clinical Trials Uncovered

We dive into the biggest myths around clinical trials—from placebo fears to accessibility issues—and set the record straight. With insights from patient…Merakoi Voice YouTube PosterPodcast episode · Hemophilia

Building Trust and Diversity in Clinical Trials: Tina Aswani Omprakash

Ever thought of clinical trials as a last resort? Think again. Tina Aswani flips that narrative in this episode, showing how trials…hemophilia patient at the center of a knowledge sphereArticle · 6 min read

From Social Media to Science: How Patients Really Learn About New Treatments

Social media has become a cornerstone for patient learning, but it lacks the depth of expert guidance, Extending the expertise of MSLs…Debbie and Patrick YTPodcast episode · Hemophilia

Bridging the Gap Between MSLs and Patient Advocacy: Patrick James Lynch

Join us for a sharp and engaging chat with Patrick James Lynch, a powerhouse advocate and storyteller in the hemophilia community. In…

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