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Voices · Topic

Patient Voice

Everything we have published on Patient Voice: 20 stories and episodes.

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A doctor reads a short chart at a desk while the patient across from him carries a heavy backpack full of stonesLatest · Article · 3 min read

She Keeps Declining Surgery. Her Notes Don't Say Why.

A friend keeps declining surgery. Her medical record says so, and nothing about why. That missing reason is exactly what trial teams never get to design around.Read the story →

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Executives celebrate a giant injector pen with confetti while, through the window, a patient reads a letter alone at her kitchen table.Article · 4 min read

My Patient Group Knew About This in April. The Literature Still Doesn't.

A switch from syringe to pen arrived as a letter, with no conversation. Within days a patient group knew what it cost.…A large group seated in a session, every person turned toward the one participant who has raised a hand to speak.Article · 4 min read

What happens when the insight is wrong?

One patient out of eighteen asked how shift workers would book their trial appointments, and it changed the scheduling design. The part…A smug AI robot presents on a stage while, in the next room, an older patient expert hands a flare-up kit to a newly diagnosed patient.Article · 4 min read

The patients AI never read about

Stigma keeps some patients silent online. Age keeps others offline entirely. Either way, AI has never heard from them, and they may…Rebekka Insider SpotlightArticle · 5 min read

Insider Spotlight: Why I’m Moving Patient Engagement "Upstream" to Find the Emotional Truth

Since I am more comfortable sharing my perspective through the written word than on camera, I wanted to take this opportunity to…merakoi mrbeastArticle · 5 min read

Why Start from Zero? Just Ask the Patient Consultant

Why start from zero with market research when you can ask someone who’s lived the disease? Patient consultants offer strategic insights grounded…depiction of balanced scales one side filled with legal symbols gavel law book the other with healthcare icons pill bottleArticle · 5 min read

Flat Journey Maps, Hidden Risks: Why Patient Feelings Must Shape Design

Elizabeth’s fear stayed off the chart, yet it turned a routine scan into paralysis — proof that emotions unseen in EHRs can…patient questionnairesArticle · 4 min read

Going Beyond the Questionnaire

Surveys used to be enough—until they weren’t. Beyond the questionnaire lies a depth of real-world patient expertise we can’t afford to ignore.…a doctor and a patient having a conversation overlaid with digital lines of AI code and chatbot interfaces illustrating theArticle · 4 min read

AI, Healthcare, and the Everyday Revolution

AI is transforming how we work—and how we manage health. From automating tedious tasks to revolutionizing patient research, AI removes barriers. Patients…Image in the style of a Mythbusters episode A nervous female southeast asian holding a medicine pill in each handArticle · 6 min read

Placebos, Myths, and Real Care: Clinical Trials Uncovered

We dive into the biggest myths around clinical trials—from placebo fears to accessibility issues—and set the record straight. With insights from patient…

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