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Voices · Podcast

The Merakoi Voices podcast

Patient experts talk about diagnosis, trials and being heard. 17 episodes.

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Merakoi Voice YouTube Poster Deepak ShuklaLatest · Podcast episode · Diabetes

Patient Voices & Health Systems in India — A Conversation with Deepak Shukla

Type 2 diabetes patient-expert Deepak Shukla traces a 25th-birthday diagnosis from rural Jharkhand to Delhi—no fridge for insulin, 200–400 km journeys for meds, and stigma that silences care. With host Helena, he shows how WhatsApp peers teach what clinics can’t,…Watch the episode →

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Merakoi Voice YouTube Poster Stephanie WynnPodcast episode · Gastrointestinal

Trust, Plain Language & Patient Navigators — A Conversation with Stephanie A. Wynn

Crohn’s survivor Stephanie A. Wynn turns six misdiagnoses and unimaginable loss into a blueprint for trust. With host Helena, she shows why…Merakoi Voice YouTube Poster Dawn MorganPodcast episode · Multiple Sclerosis

MS & Patient-Led Research — A Conversation with Dawn Morgan

MS advocate Dawn Morgan faces perimenopause, hysterectomy, and years of misread symptoms—and builds a research team to map the MS–hormones intersection. With…Merakoi Voice YouTube Poster Alfred SamuelsPodcast episode · Oncology

Numbers and Narratives – A Conversation with Alfred Samuels

Stage-four survivor Alfred Samuels relives crippling pain, a PSA sky-rocket to 800, and his “super-responder” crash to 0.1 on a clinical trial.…Elizabeth and Debbie YTPodcast episode · Cardiovascular

Confidence, Crisis, and Comeback – A Conversation with Elizabeth Manuel Bayleigh

Elizabeth, a high-powered judge turned vulnerable patient, reveals how she overcame devastating medical oversights. Explore her fight for transparency, self-advocacy, and the…Gary and Sandra YTPodcast episode

Reshaping Healthcare with Lived Experiences – A Conversation with Gary Ho

Ever felt like your 'patient engagement' is more box-checking than groundbreaking? Meet Gary Ho—who went from 'dismissed patient' to 'healthcare revolutionary.' Tune…Jeff and Kevin YTPodcast episode

AI in Healthcare: Friend or Foe? – A Conversation with Jeff TenBroeck

In this episode, Jeff TenBroeck shares how AI is transforming patient research, business automation, and even insurance decisions. From ChatGPT-powered health insights…Merakoi Voice YouTube PosterPodcast episode · Hemophilia

Building Trust and Diversity in Clinical Trials: Tina Aswani Omprakash

Ever thought of clinical trials as a last resort? Think again. Tina Aswani flips that narrative in this episode, showing how trials…Debbie and Patrick YTPodcast episode · Hemophilia

Bridging the Gap Between MSLs and Patient Advocacy: Patrick James Lynch

Join us for a sharp and engaging chat with Patrick James Lynch, a powerhouse advocate and storyteller in the hemophilia community. In…Merakoi Voice YouTube Ella BalasaPodcast episode · Respiratory

From Lab Coat to Study Participant to Trial co-Designer: Ella Balasa

Join us for an insightful conversation with Ella Balasa, a patient expert and advocate with extensive experience in clinical trial co-design. This…

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