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Voices · Topic

Patient Engagement

Everything we have published on Patient Engagement: 20 stories and episodes.

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Executives celebrate a giant injector pen with confetti while, through the window, a patient reads a letter alone at her kitchen table.Latest · Article · 4 min read

My Patient Group Knew About This in April. The Literature Still Doesn't.

A switch from syringe to pen arrived as a letter, with no conversation. Within days a patient group knew what it cost. The published record still says nothing changed.Read the story →

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A large group seated in a session, every person turned toward the one participant who has raised a hand to speak.Article · 4 min read

What happens when the insight is wrong?

One patient out of eighteen asked how shift workers would book their trial appointments, and it changed the scheduling design. The part…A smug AI robot presents on a stage while, in the next room, an older patient expert hands a flare-up kit to a newly diagnosed patient.Article · 4 min read

The patients AI never read about

Stigma keeps some patients silent online. Age keeps others offline entirely. Either way, AI has never heard from them, and they may…A home blood pressure cuff and monitor, a coffee, and a phone showing an empty chat bubble on a kitchen table; the chair is emptyArticle · 6 min read

Ten years of blood pressure, and a chatbot that never knew my GP retired

My dad's question, a paper diary, a GP who retired mid-monitoring, and a chatbot that got very good at my data while…Rebekka Insider SpotlightArticle · 5 min read

Insider Spotlight: Why I’m Moving Patient Engagement "Upstream" to Find the Emotional Truth

Since I am more comfortable sharing my perspective through the written word than on camera, I wanted to take this opportunity to…A serene visualization of a female patient at the center of a knowledge sphere where jumbled medical data represented byArticle · 7 min read

Why Patient-Driven Lay Summaries Matter in Healthcare

"Clinical trial information and medical research are often locked behind complex terminology," says Ashley Lora, patient expert living with atopic dermatitis for…obesity treatments with melanieArticle · 6 min read

Why Obesity Treatment Requires More Than Medication

Obesity treatment isn't just about medication or weight loss," says Melanie Bahlke, patient expert. "It's about changing your mind, not just your…A female patient with long red hair sitting at a computer searching for information on ulcerative colitis with browser tabsArticle · 8 min read

The Patient Left in the Dark

I am the patient who has been left with many unanswered questions, the one who has had to do my own research…segmentationArticle · 7 min read

Delivering Personalised Experiences in Co-Designed Interventions

By focusing on activation as a driver for the solutions we create, we can provide a personalised experience that empowers them to…IBD superheroes logoArticle · 7 min read

Superhero Communities in Chronic Diseases

Seven years after being diagnosed with ulcerative colitis, a form of inflammatory bowel disease (IBD), I finally opened up about it online.…

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