Join UsBook a Consultation
Voices · Topic

Patient Voice

Everything we have published on Patient Voice: 18 stories and episodes.

← All of Voices
A large group seated in a session, every person turned toward the one participant who has raised a hand to speak.Latest · Article · 4 min read

What happens when the insight is wrong?

One patient out of eighteen asked how shift workers would book their trial appointments, and it changed the scheduling design. The part worth noticing is what you can do next when a real person said it. Gap 5 of five.Read the story →

More on this topic

A group of people talking together inside an enclosed space while one person outside reaches toward them without making contact.Article · 4 min read

The patients AI never read about

Stigma keeps some patients silent online. Age keeps others offline entirely. Either way, AI has never heard from them, and they may…Rebekka Insider SpotlightArticle · 5 min read

Insider Spotlight: Why I’m Moving Patient Engagement "Upstream" to Find the Emotional Truth

Since I am more comfortable sharing my perspective through the written word than on camera, I wanted to take this opportunity to…merakoi mrbeastArticle · 5 min read

Why Start from Zero? Just Ask the Patient Consultant

Why start from zero with market research when you can ask someone who’s lived the disease? Patient consultants offer strategic insights grounded…depiction of balanced scales one side filled with legal symbols gavel law book the other with healthcare icons pill bottleArticle · 5 min read

Flat Journey Maps, Hidden Risks: Why Patient Feelings Must Shape Design

Elizabeth’s fear stayed off the chart, yet it turned a routine scan into paralysis — proof that emotions unseen in EHRs can…patient questionnairesArticle · 4 min read

Going Beyond the Questionnaire

Surveys used to be enough—until they weren’t. Beyond the questionnaire lies a depth of real-world patient expertise we can’t afford to ignore.…a doctor and a patient having a conversation overlaid with digital lines of AI code and chatbot interfaces illustrating theArticle · 4 min read

AI, Healthcare, and the Everyday Revolution

AI is transforming how we work—and how we manage health. From automating tedious tasks to revolutionizing patient research, AI removes barriers. Patients…Image in the style of a Mythbusters episode A nervous female southeast asian holding a medicine pill in each handArticle · 6 min read

Placebos, Myths, and Real Care: Clinical Trials Uncovered

We dive into the biggest myths around clinical trials—from placebo fears to accessibility issues—and set the record straight. With insights from patient…Merakoi Voice YouTube PosterPodcast episode · Hemophilia

Building Trust and Diversity in Clinical Trials: Tina Aswani Omprakash

Ever thought of clinical trials as a last resort? Think again. Tina Aswani flips that narrative in this episode, showing how trials…hemophilia patient at the center of a knowledge sphereArticle · 6 min read

From Social Media to Science: How Patients Really Learn About New Treatments

Social media has become a cornerstone for patient learning, but it lacks the depth of expert guidance, Extending the expertise of MSLs…Debbie and Patrick YTPodcast episode · Hemophilia

Bridging the Gap Between MSLs and Patient Advocacy: Patrick James Lynch

Join us for a sharp and engaging chat with Patrick James Lynch, a powerhouse advocate and storyteller in the hemophilia community. In…Merakoi Voice YouTube Ella BalasaPodcast episode · Respiratory

From Lab Coat to Study Participant to Trial co-Designer: Ella Balasa

Join us for an insightful conversation with Ella Balasa, a patient expert and advocate with extensive experience in clinical trial co-design. This…A serene visualization of a female patient at the center of a knowledge sphere where jumbled medical data represented byArticle · 7 min read

Why Patient-Driven Lay Summaries Matter in Healthcare

"Clinical trial information and medical research are often locked behind complex terminology," says Ashley Lora, patient expert living with atopic dermatitis for…obesity treatments with melanieArticle · 6 min read

Why Obesity Treatment Requires More Than Medication

Obesity treatment isn't just about medication or weight loss," says Melanie Bahlke, patient expert. "It's about changing your mind, not just your…A female patient with long red hair sitting at a computer searching for information on ulcerative colitis with browser tabsArticle · 8 min read

The Patient Left in the Dark

I am the patient who has been left with many unanswered questions, the one who has had to do my own research…merakoi mini communitiesArticle · 5 min read

How to Beat the Competition with Patient Outcomes

To uncover rich patient insights, merakoi employed a unique methodology, empowering PwMS as research partners. By harnessing the power of patient-led research…segmentationArticle · 7 min read

Delivering Personalised Experiences in Co-Designed Interventions

By focusing on activation as a driver for the solutions we create, we can provide a personalised experience that empowers them to…IBD superheroes logoArticle · 7 min read

Superhero Communities in Chronic Diseases

Seven years after being diagnosed with ulcerative colitis, a form of inflammatory bowel disease (IBD), I finally opened up about it online.…
linkedin facebook pinterest youtube rss twitter instagram facebook-blank rss-blank linkedin-blank pinterest youtube twitter instagram