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Voices · Topic

Patient Engagement

Everything we have published on Patient Engagement: 20 stories and episodes.

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Executives celebrate a giant injector pen with confetti while, through the window, a patient reads a letter alone at her kitchen table.Latest · Article · 4 min read

My Patient Group Knew About This in April. The Literature Still Doesn't.

A switch from syringe to pen arrived as a letter, with no conversation. Within days a patient group knew what it cost. The published record still says nothing changed.Read the story →

More on this topic

A large group seated in a session, every person turned toward the one participant who has raised a hand to speak.Article · 4 min read

What happens when the insight is wrong?

One patient out of eighteen asked how shift workers would book their trial appointments, and it changed the scheduling design. The part…A smug AI robot presents on a stage while, in the next room, an older patient expert hands a flare-up kit to a newly diagnosed patient.Article · 4 min read

The patients AI never read about

Stigma keeps some patients silent online. Age keeps others offline entirely. Either way, AI has never heard from them, and they may…A home blood pressure cuff and monitor, a coffee, and a phone showing an empty chat bubble on a kitchen table; the chair is emptyArticle · 6 min read

Ten years of blood pressure, and a chatbot that never knew my GP retired

My dad's question, a paper diary, a GP who retired mid-monitoring, and a chatbot that got very good at my data while…Rebekka Insider SpotlightArticle · 5 min read

Insider Spotlight: Why I’m Moving Patient Engagement "Upstream" to Find the Emotional Truth

Since I am more comfortable sharing my perspective through the written word than on camera, I wanted to take this opportunity to…A serene visualization of a female patient at the center of a knowledge sphere where jumbled medical data represented byArticle · 7 min read

Why Patient-Driven Lay Summaries Matter in Healthcare

"Clinical trial information and medical research are often locked behind complex terminology," says Ashley Lora, patient expert living with atopic dermatitis for…obesity treatments with melanieArticle · 6 min read

Why Obesity Treatment Requires More Than Medication

Obesity treatment isn't just about medication or weight loss," says Melanie Bahlke, patient expert. "It's about changing your mind, not just your…A female patient with long red hair sitting at a computer searching for information on ulcerative colitis with browser tabsArticle · 8 min read

The Patient Left in the Dark

I am the patient who has been left with many unanswered questions, the one who has had to do my own research…segmentationArticle · 7 min read

Delivering Personalised Experiences in Co-Designed Interventions

By focusing on activation as a driver for the solutions we create, we can provide a personalised experience that empowers them to…IBD superheroes logoArticle · 7 min read

Superhero Communities in Chronic Diseases

Seven years after being diagnosed with ulcerative colitis, a form of inflammatory bowel disease (IBD), I finally opened up about it online.…a patient and a doctor playing jengaArticle · 7 min read

Unleashing Patient Power: Co-Design for Better Trials

From Passive Participants to Active Co-Designers Imagine a world where clinical trials prioritize the needs of patients, not solely focus on testing…user researchers trying to decode the end userArticle · 6 min read

Decoding the Human Element

How User Research Shapes Health Innovation Imagine you're a master chef. You've spent months crafting the perfect dish, a combination of exotic…merakoi driving patient value by minimizing patient burgenArticle · 10 min read

Driving patient value by minimizing patient burden

  VALUEPatient  = (HEALTH OUTCOMESPatient) / (BURDENPatient) In the first part of this article, the focus was on increasing patient value by…merakoi driving patient valueArticle · 9 min read

Driving patient value by improving health outcomes

It has often been said that “value is in the eyes of the beholder.”  Michael Porter, professor at Harvard Business School, introduced…merakoi define scope patient councilArticle · 8 min read

Amplifying the Patient Voice: Define the scope of the Patient Council

There is value to incorporating the insight and experience of patient experts throughout the patient journey.  In Part 1 of this article,…merakoi establishing patient councilArticle · 9 min read

Amplifying the Patient Voice: Establishing a Patient Council

“Voice of the Customer.”  The customer has been a focus of business for over fifty years and a key component of Total…merakoi why women advocate more than menArticle · 1 min read

Patient Advocacy: Why Do Women Advocate More Than Men?

Why are women more likely than men to pursue patient advocacy roles? An interesting study conducted by the patient engagement consultancy, merakoi, looked…merakoi cocreation patientfriendly health materialsArticle · 7 min read

9 Steps To Successful Co-Creation Of Patient-Friendly Health Materials

For several decades, the concept of co-creation has been integral to a variety of industries. As defined by Wikipedia, “co-creation, in the…merakoi evolution of patient journeyArticle · 6 min read

The Evolution of the Patient Journey – From Passive to Engaged Healthcare Partner

According to Webster’s dictionary, evolution is “the process of formation or growth, that is often gradual, progressive change over time.” As seen…Help ppatientArticle · 3 min read

Helping people better navigate life with a disease

We believe that the people best equipped to address the complexities of a disease are the people who live with it every…
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