merakoi

Advances in biomarker discovery are helping scientists learn more about the drivers that cause many types of cancers to grow. Neurotrophic tyrosine receptor kinase (NTRK) gene fusions are an actionable biomarker for cancer therapy found infrequently in common tumor types but found frequently in certain rare tumors.  To help us understand more about this topic, […]

Atopic eczema is one of the most prevalent skin conditions globally, affecting over 230 million people worldwide. There is a tendency to dismiss it as "just a skin condition," which means patients' needs are not always met in a timely and supportive manner. Also known as atopic dermatitis (AD),  the condition affects mental health and […]

On our most recent LinkedIn Live broadcast, we featured Jennifer and Dan Digmann, two of our patient experts in MS. Jennifer was diagnosed with multiple sclerosis in 1997 and has secondary-progressive MS; Dan was diagnosed in 2000 and has relapsing-remitting MS.  Their inspirational stories of life, love, and overcoming adversity are shared via their blog […]

June is Immunotherapy Awareness Month, and we are so pleased to have the opportunity to sit down with merakoi patient expert, Oriana Sousa, to discuss her experience of treatment with immunotherapy for an aggressive form of ovarian cancer. At just 22 years of age, Oriana was diagnosed with small cell ovarian cancer-hypercalcemic type (SCCOHT).  Following […]

In honor of World MS Day, we were delighted to host MS patient expert, Robert Joyce as our latest LinkedIn Live guest. In 2017, Robert started a blog called A 30 Minute Life because his life had been dramatically changed as a result of a car accident. The crash left him in continual pain, and […]

Findings from our survey Today, May 20th, we celebrate International Clinical Trials Day, a commemoration of the day that James Lind laid the foundation for modern clinical research in May 1747. At a time when scurvy was thought to have killed more British seamen and sailors than French and Spanish armies combined, surgeon’s mate James […]

In honor of Colorectal Cancer (CRC) Awareness Month, we were delighted to host Stage IV survivor and merakoi patient expert, Stacy Hurt, as our LinkedIn Live guest on Thursday, March 17th, 2022. A 20+ year award-winning healthcare executive, Stacy has worked cross-functionally in physician practice management and pharma across sales, marketing, training, operations, customer service, […]

Why are women more likely than men to pursue patient advocacy roles? An interesting study conducted by the patient engagement consultancy, merakoi, looked at the reasons why patients advocate for their diseases and why women advocate more frequently than men. The results were published in an infographic which shows improving patient experience is the top motivator […]

On this year's World Cancer Day, which occurred on Friday, 4 February, the theme was the equity gap in cancer care. “People who seek cancer care hit barriers at every turn. Income, education, geographical location and discrimination based on ethnicity, race, gender, sexual orientation, age, disability and lifestyle are just a few of the factors […]

A diagnosis of lung cancer carries with it a stigma that can add an increased burden to those coping with the disease. Some patients feel they can't disclose their illness or reach out for help for fear of being judged and blamed for having a "self-inflicted" disease.  Anti-smoking campaigns over the past decades have focused on […]