Bridging the Gap Between MSLs and Patient Advocacy: Patrick James Lynch

Episode Overview

Join us for an enlightening discussion with Patrick James Lynch, a filmmaker and advocate in the hemophilia community. Patrick shares his unique perspective on how social media and peer-to-peer learning shape the way patients discover new treatments. Building on his extensive experience in patient advocacy, the conversation delves into the gaps in patient education and the untapped potential of medical science liaisons (MSLs) in empowering patients.

Guest Bio

Patrick James Lynch - Advocate, award-winning filmmaker, and co-founder of BloodStream Media, a platform dedicated to storytelling and education for bleeding disorders. Patrick has spent years advocating for better education and engagement within the hemophilia community, blending lived experience with a deep understanding of patient challenges.

Key Topics

• How social media shapes patient learning journeys
• Peer-to-peer learning: Strengths and limitations
• Expanding the role of MSLs to include patients
• Addressing the complexity of shared decision-making
• Strategies for bridging the gap between science and lived experience

"Patients aren’t just looking for information; they’re looking for trust, for tools that help them feel empowered and informed."

Main Takeaways

1. Peer-to-peer learning is powerful but requires expert support to avoid misinformation.
2. Expanding MSL roles to patients can transform how medical science is communicated.
3. A strategic, multi-touch approach to patient education is critical for meaningful engagement.

About Merakoi
At Merakoi, we're passionate about harnessing the power of mini-communities to bridge the information gap and empower patients to take control of their health journeys. By fostering ongoing collaboration between patients, healthcare providers, and pharma companies, we're creating a future where every patient has access to the knowledge and support they need to thrive.

Together, we can build a world where no patient is left in the dark, searching for answers. If this sounds like the kind of healthcare innovation you want to participate in, let's chat!